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The Ethics of Biomedical Big Data

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Springer International Publishing img Link Publisher

Geisteswissenschaften, Kunst, Musik / Sonstiges

Beschreibung

This book presents cutting edge research on the new ethical challenges posed by biomedical Big Data technologies and practices. ‘Biomedical Big Data’ refers to the analysis of aggregated, very large datasets to improve medical knowledge and clinical care. The book describes the ethical problems posed by aggregation of biomedical datasets and re-use/re-purposing of data, in areas such as privacy, consent, professionalism, power relationships, and ethical governance of Big Data platforms. Approaches and methods are discussed that can be used to address these problems to achieve the appropriate balance between the social goods of biomedical Big Data research and the safety and privacy of individuals. Seventeen original contributions analyse the ethical, social and related policy implications of the analysis and curation of biomedical Big Data, written by leading experts in the areas of biomedical research, medical and technology ethics, privacy, governance and data protection. The bookadvances our understanding of the ethical conundrums posed by biomedical Big Data, and shows how practitioners and policy-makers can address these issues going forward.

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Kundenbewertungen

Schlagwörter

Intensified Data Sourcing, Big Governance, Mental health research, Ethics of Biomedical Big Data, Use of electronic health records, Information Carriers, Ethico-sociological landscapes, Biological Samples